I had my blood drawn Tuesday. My numbers are looking even a bit better than last time!
Here's all the stats:
DATE Bilirubin ALP AST ALT
Normal .1-1.3 30-132 5-35 7-56
2/20/2012 1.7 937 235 389 Initial
3/6/2012 ?? 633 142 253 Almost 3 wks gluten free
4/16/2012 1 194 59 101 Gluten Free and Ursodiol
5/14/2012 1 160 36 56 Gluten Free and Ursodiol
7/6/2012 1.2 163 31 42 Gluten Free and Ursodiol
10/3/2012 1.4 221 58 113 Gluten Free and Ursodiol
01/31/2013 .9 201 47 72 Gluten Free and Ursodiol
04/30/2013 1.2 188 36 44 GF, Urso, Consistent green drinks&exercise
07/30/2013 1.1 185 36 36 GF, Urso, Consistent green drinks&exercise
So my numbers are pretty stable, slightly better. I've also added in some Alpha Lipoic Acid and Milk Thistle- both are supposed to help support liver function. I've been slowly incorporating, now that I see things are going well, I will start increasing the amount.
I also found out that the best indicators of liver health are albumin, bilirubin and prothrombin time (PT). I haven't been tracking exactly my albumin, but I do know on 2/2012 it was 4.6, on 5/14/12 it was 4.3 and this time is was 4.3 - Under 5 is good. So I'm good on that regard.
They didn't do the PT this time, but will next time and I know a previous time it was acceptable, but don't know the number.
My bilirubin is within normal range, but I'd really like to get it lower.
So I'm still working. I will always be working on this. Even when everything looks normal, I will be working to keep it that way. I won't ever have a time that I can just forget about this, but I am trying to get better about not 'worrying' about it. I am doing all that I know and continually trying to learn more. I will be armed with more information as time goes on.
I will never take for granted that I know all there is to know about this.
I will never take for granted my health.
I will never take for granted Zoe's health.
As my daughter she has a huge risk for this. Even if it's not prevented, this way of life will be beneficial for her. She will understand what is good for you and what isn't. She will know what it will take to keep herself healthy. She will have to make that decision for herself, but I will do my best to help her and to make it as painless as possible to maintain this sort of life.
Honestly, eating whole, fresh, unprocessed food and staying fit are technically good advice for everyone! So I hope even those without PBC can pull something of use from my journey as well.
Have a wonderful weekend everyone!